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The Butterfly Room - A free Forum to share your concerns, stories and inspirations, with others who have Lupus, or family members and loved ones of those with Lupus.

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Coping With Lupus

Whether you have a mild or more serious form of lupus, it is important to take good care of yourself, as well as seek close medical supervision to keep the disease under control. Learn as much about lupus as possible.

In the beginning, or even through the course of treatment, it is common to have feelings of uncertainty or experience emotions such as depression, fear, guilt, and anger. You are not alone in having these feelings, and it can take time to adjust to your illness. It may be helpful to discuss your feelings with family members, friends, or someone else who has the same or similar condition. There are also support groups in many areas. If the adjustment seems overwhelming, you may want to consider seeking the help of a counselor.

Fatigue and joint pain are chronic problems often experienced with lupus. It is important to get adequate rest and slow down when your body is telling you to. If you push yourself too hard, it may lead to onset of symptoms. Many experts recommend 8 to 10 hours of sleep at night and naps during the day as needed.

Excercising on a regular basis is also very helpful. It may sound like the opposite of what you think you should do, but most find it very beneficial in promoting a general wellbeing. Excercise helps to increase range of movement and reduces fatigue.

Protect yourself from the sun to avoid triggering a flare. Wear sun protective clothing, sunscreen, and maybe a wide-brimmed hat to help protect from the UV light.

Strive to adopt a positive attitude and to be happy. Don't be afraid to set goals, but realize you need to be flexible. Keep in mind that living well is possible with lupus. It is important that you take control of your illness and not allow it to take control of you!

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